Since David Tuller, DrPH, a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health at Berkeley University, started writing extensively about the flaws of the now infamous PACE-trial for “CFS”. A real paradigm shift is happening and I’m beyond honored to have been able to meet him, photograph him and ask him a few questions. Enjoy this exclusive interview with this incredible man!!
2016 turned out to be one of the most challenging years I have ever had to deal with. My housing situation was impossible in combination with my disease. I reached a real breaking point and became in need of urgent help. What did the Dutch health care system have to offer me? Did I get any help??
As a dancer I have been surprised by the treatments I’ve received for my disease Myalgic Encephalomyelitis. I want to share my opinion from a dancer’s perspective. What do other professional ballet dancers think about the treatments and the current care that’s being offered to ME patients??
I’m raising awareness for Myalgic Encephalomyelitis (M.E.) better known as Chronic Fatigue Syndrome (CFS) through (performance) art. M.E. is a debilitating neuroimmune disease affecting 17 million children & adults worldwide. The name CFS wrongly suggests that this illness is all about chronic fatigue or rather chronic exhaustion. I asked some my fantastic friends, who are (former) professional dancers and fellow artists to help me explain.