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My promised saline IV update. How did it go?

This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s seemed to be the best solution to help with my orthostatic intolerance or rather my postural orthostatic tachycardia syndrome. What could go wrong with a bit of water and salt, right??

 

The update.

To start this blog off I want to thank the mother of a friend of mine. Without her this would not have been possible as it seemed to be extremely difficult to just get saline IV’s without any additional stuff included that’s administered at home. In my current state making phone calls is not really my forte and neither is writing a lot of emails in a row. It took a lot out of me. So this was just fantastic to have someone helping me out. She moved a lot of mountains to get this show on the road. Incredible. Thank you again “mother of a friend” for being such a sweet friend. You are amazing. You know who you are!!!

I knew this would be difficult for me. After my relapse in 2013 I started to have problems with tolerating people in the same room as me. No energy to process the presence of someone nearby. In 2016 this took a turn for the worst. I was living in an old house and my upstairs neighbours were extremely loud. They had a little kid running for hours on end. I couldn’t process the noise. It resulted in me being in one post-exertional malaise crash after the other. I went from being able to cook for myself to being bed bound. Even just having someone coming inside of the house for a few seconds without me seeing them would make me worse for the rest of the day or even several days. I ended up having no social interaction for about 11 months. I didn’t see anyone, call, Skype. Just short messages via WhatsApp. Avoiding any sound and light. Really extreme.

Once we installed a sound isolation cabin I improved a bit again and since I moved to a new place things improved even further. These are very small improvements and sadly the physical part hasn’t caught up but I am able to read and write a bit more. This year I even had 4 visitors (that excludes doctors etc.) as opposed to one in 2016.

 

The IV virgin.

My first IV was exciting of course. My best friend Frans, who’s also my carer and superhero in one, let the nurse in. She prepared the IV in the living room with the bedroom door closed. Trying to conserve as much of my energy as possible. Frans explained to her not to talk or be too energetic.

They both came in and Frans opened the curtains a bit and I covered my eyes with a t-shirt. She hung the IV fluids with a cloth hanger on the clothing rack next to my bed. Very Anil chic. She was super friendly and quiet but it was soon clear my veins were nowhere to be found. Having no muscle tone from inactivity, a darkened room and a dark skin was not helping. She was tapping on my arm forever, turning it around, looking for a better spot while Frans was holding his phone with the flashlight lit. So there she started talking. Listening for some reason is extremely heavy. My body starts producing even more lactic acid. Stiffening up like an ironing board in bed. My whole body deprived of oxygen. So obviously not a great feeling but I was laughing it off. Keeping it light.

She managed to insert the needle in one go and that was that. She turned on the IV and they left. It only took about 10 minutes, but for me, with 2 people in the room so close, it was very intense. It felt like running an uphill marathon while lying in bed. But as I rested up the days beforehand and I managed to not be in a crash that day the recovery “only” took about 4 days. The issue is that the IV only works for 2 to 3 days so it was hard to really experience what it did exactly. I did however feel like I was more clear headed than I normally was during a big crash. Like there was oxygen reaching my brain for the first time in 10 years. On top of that I normally never tolerate medication. I can only up any meds with a small crumb. Max 1/32 of a pill. The IV went remarkably well. So it was worth it to try this again.

 

Take 2.

The following week another friend, who’s also a superhero, opened the door for a new nurse. He explained to her in the living room what to do and once she came in she was trying her best to be very quiet. Very sweet. We turned on the main light this time. I covered my eyes with a cloth but she couldn’t find my veins either. Tapping on my arm like a bird does to get the earthworms to come to the surface had been to no avail. A failed worm charming or in this case a failed vein charming. Of course she started talking about it and I removed the cloth. Way too much light and more talking.

She climbed over me to get to the other arm. It was the first time since my relapse that I had someone this close. So intense. She went on with the vein charming and then started some small talk to probably make me feel at ease. I have no recollection of what she asked as it was a total blur. But while talking she laid her hand on my arm and moved a little closer with her face. I had to remove the cloth from my eyes again. So there was the light, her face close to mine. Me needing to process her facial expressions, her perfume and the touch of her hand on me. I was in overdrive. I wanted to scream but she was so sweet and she tried so hard. I mumbled something and hushed me not to talk…Luckily my left arm had an eligible vein to penetrate. Thank God that part was over.

With Frans we try to keep the visits short to not provoke any hard crashes. He either just quickly waves around the bedroom doorpost or he comes in and says a few sentences which is already quite heavy. So I always ask him to reduce our conversation or him coming in. Preferably just once. For me having someone come inside of my room feels a bit like that feeling of being on stage or giving a speech in front of a lot of people. Or a feeling of needing to move a big and heavy obstacle. An overwhelming feeling of needing to push for a big exertion. It’s a very unpleasant and intense feeling.

For me having someone come inside of my room feels a bit like that feeling of being on stage. An overwhelming feeling of needing to push for a big exertion.

Weirdly enough I’m not stressed myself. I am a super social person. I normally love having people around. I’m not scared of people, my friends or the nurse. Just my body does the opposite of what I want. It feels like my body is not able to expand the energy that’s needed and in order to compensate for the lack of energy, my body therefore produces a surge of adrenaline to be able to deal with the situation. Which obviously is not helping. I tried different drugs to mitigate the problem and that feeling has recently improved somewhat since I upped on a drug called Mestinon (I will blog about that later). One thing I can tell you though is that it’s extremely annoying and it zaps away all your energy very quickly.

Anyways the nurse forgot the tape to fix the IV so she had to get it. After that, she collected all the rubbish on my bed and she left to dispose of this in the trashcan in the kitchen. I think she came into my room about 6 times in total. So that’s 6 times of enduring that big push feeling. Oh fudge. I was so super wasted after that meeting.

This time the crash was huge. It took about 7 days to recover. It really felt like some outer body experience. My body fighting to recover but not finding the right fuel to do so. Walking from my bed to the kitchen felt like being a tightrope walker or rather shuffler getting from the roof of one skyscraper to the other on a body full of lactic acid. Terrible! On the positive side, the IV was again making me feel a bit clearer in my head rather than normal during a crash but again the crash was harder than the benefit of the IV…

 

Third time’s a charm

The third time I had the other nurse again. I wrote down a few instructions. Maybe things would go smoother. No talking, no touching, to come in only once etc. Oh man…isn’t this disease ridiculous!!! The bag with the IV fluid went back on the clothing rack and she started tapping. She inserted the needle but the IV wouldn’t run. Nothing happened. It didn’t drip. So we started to communicate with regards to this problematic issue. She tried for the second time, but probably missed the vein. That didn’t help. She moved to the left arm. Again a missed hit! At a certain point I had 1 needle in each arm and a third that she pulled out. Blood started spurting out from my vein over my bed. Too freaking bizarre. In hindsight a funny situation but at the time I was again feeling like my bed was on the same trajectory as a rollercoaster.

She thought that maybe the mechanism of the IV wasn’t working and went to look for another one in her car. When that didn’t solve the problem she went for a fourth and last try. This time it worked. That visit took about 25 minutes in total with a lot of talking and also light. Omg…It was really a traumatic experience! I felt so bad for her as well. She really tried her best. I could see that she was stressed out because I was getting worse by the minute.

It took me about 2 ½ weeks to recover. The crash was even harder than it had been the last time. I had no choice but to cancel the following 2 appointments. It was impossible to feel up to it. I was simply too ill. This is also exactly what happens with me during graded exercise therapy. Instead of me improving, I worsened and the crashes became longer. Obviously extremely frustrating as well as disappointing as I do feel the IV’s have benefitted me.

 

Square 1.

Another possibility would’ve been a PICC line but getting my butt to the hospital is a bit of an issue. I mean I had to recover 2 ½ weeks from this last date with the nurse while I absolutely did nothing but lie still in bed. So you can imagine what will happen if I have to go to the hospital. We tried to find someone to administer it at home but that seems to be hard to find and it would need to be cleaned on a weekly basis so I would still have to deal with visitors.

I came to the conclusion that with me becoming so increasingly ill from having someone in the room instead of feeling a small improvement from the IV itself, that it was unfortunately not worth the pain. Out of experience, I know it’s better to listen to my body, not to push through, because it would only result in me getting worse.

Clearly this damn disease is hard to deal with for everyone involved. It’s never plain sailing. I was sad about it though. I finally found a treatment my body seems to be tolerating as normal medication, however it’s too hard to build up and there were some benefits with the IV. Yet this time I can’t handle it because of some weird issue with having someone around me for too long…

So that’s it. No more IV for me. Would I recommend this to people with ME and especially people with orthostatic intolerance issues? Yes for sure. Sadly not many doctors are aware of the benefits or have a hard time understanding this disease in the first place. I hear of quite a few patients who are being laughed at for even suggesting it. Quite sad. Hopefully they’ll read these type of blogs by patients and I really can call myself lucky with my current GP.

What has your experience been with saline IV’s? Please let me know in the comment section down below.

Groetjes,

Anil

editor: Russel Mohan

Anil van der Zee

Former dancer, teacher, aspiring choreographer & photographer.
Currently life on hold; Myalgic Encephalomyelitis.
Blogging out of necessity.

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  • holive

    Thanks for this Anil. Manon has contemplated this since reading about how it helped Jamieson in US, but as you said here in UK it would not be considered an option. The Mestinon, however, after 5 weeks is proving to be helping. Manon is getting more daily steps, heart rate has dropped a little (both these are recorded on her wrist day and night) and she ‘feels’ slightly better.

    • Anil van der Zee

      Yeah, that’s so good to hear. I have to go up with the Mestinon as well. I’ll probably continue next week. Fingers crossed.

  • smashman42

    I had an operation almost exactly a year ago (totally unrelated to ME) and the time with a saline drip was really good, more mental clarity like you mentioned, but the uncomfortable bed & all the light and noise (even with a private room) kind of cancelled out the benefit.

    • Anil van der Zee

      Yup. That sounds the same as what I’ve experienced. Sadly. I’m hoping I’ll improve to experience it without the crash of visitors… 😎

  • @Tweetyaccount

    That’s a nice little tile wisdom, Anil! Pity it didn’t work out, but I can relate to not tolerating treatments. Tried waist high compression stockings, but gave too much reflux. Tried to take a 10 min standing test in hospital, but couldn’t manage fasting 6 hours and not wearing compression stockings beforehand. So even the test was impossible. No experience with saline IV, but with the rejection of the request. “It’s not any better than salt and fluids through diet”.

    Did you have blood volume tested and what reference values did they use?

    • Anil van der Zee

      Wow. Yeah I don’t tolerate oral salt with fluids. Why? No clue. This worked though. What an ignorant comment….

      I have no idea about the blood volume. It’s been tested I guess. But since being housebound I haven’t been tested anymore. Which is since 2013

  • Joanna Frost

    Hi Anil, I sympathise with the ‘weird issue with having someone around me for too long’ as I used to be severe, with all its concomitant problems, such as extreme sensitivity to noise, touch etc. It was hell and, as I imagine it is for you too, pretty lonely. I used to think of it as being allergic to life.

    I don’t have advice as to what medical interventions helped as I didn’t receive any, but even without it, I did improve enough to be able to look after myself and go out once every week or two for a normal night out. I hope that happens for you too. I still have more sensitivity than friends who are also considered moderate, which I put down to me having been severe and them not, but it’s bearable at this level. Sorry, if this is too long for you to read- I just thought it might help to know that such a bizarre and extreme symptom can improve. Good luck, Jo x

    • Anil van der Zee

      Super sweet of you to write this hopeful message. I’m sure many other patients will find this encouraging. So happy for you that you have improved. Thank you for sharing ❤️

    • jimells

      >>”I used to think of it as being allergic to life.”

      I suspect this may be closer to the truth than we realize. I found out that I am literally allergic to being upright: just standing would cause generalized itching after only a few minutes, until I started taking anti-histamines. Anti-histamines also stopped the worst of my frequent hyperadrenergic POTS crashes, so I no longer bother with IV salines.

      A big part of Naviaux’s Cell Danger Response is the release of extracellular ATP to spread the danger signal. And one cell type that responds to extracellular ATP is the mast cell, the one-cell wrecking machine responsible for allergic reactions, anaphylaxis, etc. Mast cells release over 200 mediators – histamine is only the start. According to Afrin (2016), [1] they can cause most or all of the symptoms commonly reported by ME patients.

      It’s not clear to me whether mast cels can cause the energy limitation that seems to be the core of this horrid disease – and researchers aren’t asking that question. Apparently they still consider mast cells to be the “appendix of the immune system”. I really wish they would spend a few hours reading the research literature. Here is a good place to start:

      [1] Afrin et al, 2016, “Often seen, rarely recognized: mast cell activation disease–a guide to diagnosis and therapeutic options”
      https://www.ncbi.nlm.nih.gov/pubmed/27012973

      • Joanna Frost

        It’s funny you should mention this as I’ve just started seeing a gynaecologist who has some interest in ME, and he thinks it’s Mast Cell Acivation Disorder. I haven’t got as far as being given anti-histamines yet, but he did put me on an anti-histamine diet. I followed it for three months, but saw no improvement- have you tried the diet, and if so, did you notice any changes? It’s an extremely difficult diet to stick to (and I’ve done a few) so I was slightly relieved it didn’t do much for me! Which anti-histamine did you find effective?
        X

        • jimells

          I speculate that ME is more than a mast cell disorder, i.e., mast cells might play a role in etiology and persistence, just like they play critical roles in recruiting other immune cells, wound healing, etc.

          Researchers look at B cells, T cells, natural killer cells, but ignore mast cells, who seem to be the conductors of the whole orchestra, if I understand the literature correctly.

          Since the IBS forces me to eat a low carbohydrate diet, and I have little energy available for food prep, if I also tried to eat low anti-histamine, I would starve.

          I take ceterizine (Zyrtec) 10 mg twice a day, cimetidine (Tagamet) 100 mg twice a day, diphenhydramine (Benedryl) 25 mg at bedtime, and half an aspirin every 4 hours during the day.

          Ceterizine, an H1 blocker, works on the itching, IBS, etc. Cimetidine, an H2 blocker, reduces stomach acid which is not helpful for me, but both H1 and H2 blockers reduce mast cell activation via autocrine histamine receptors.

          Yes this is a positive feedback loop: mast cells release histamine, which induces more mast cell release of histamine, and that’s how people end up with severe anaphylaxis, and sometimes dead, like one of my neighbors.

          Less mast cell activation seems to mean less norepinephrine, with fewer and milder hyperadrenergic POTS crashes, at least for me.

          The diphenhydramine helps me sleep longer, instead of waking up itching and restless at 3 AM. The aspirin is supposed to inhibit prostaglandin D2, and it seems to stabilize my blood pressure when I stand, instead of it steady dropping until I either lay down or fall down.

          I hope this helps – Anil, I apologize if this highjacks the thread.

          • Joanna Frost

            Thanks for all this- it’s very helpful. And yes, sorry, Anil, for hi-jacking x

          • Anil van der Zee

            Very helpful indeed and not hi-jacking at all. Keep them coming. Thanks

          • @Tweetyaccount

            I take cetirizine every day because I am allergic to my cats, but I don’t notice any difference in ME symptoms. Is it the dose? I think I take 10 mg or the standard dose for allergies.

  • Scott Simpson

    Hi Anil, as someone with ‘mild’ ME, I find you are both inspiring and frightening to me:

    Inspiring for being so strong, so determined in spite of being so incredibly sick and disabled, yet willing to share this journey, certainly at a cost to you but benefit to our community and the broader public sphere.

    And frightening in the severity of your ME: it terrifies me that I may become as sick and disabled as you.

    If that eventuates, I can only hope that I am able to muster the same dignity and empathy you exude.

    • Anil van der Zee

      Scott, thank you for your kind words. I hope it doesn’t eventuate. Many people stay at the level they are. I would’ve but sadly my living situation influenced my health a lot.

  • Janneke

    I’ve so much respect for you Anil, words fail me. I have recovered from severe to mild. I recognize your sensitivty to medication and smells. You can ask nurse to not wear any perfume, I always tell visitors that and generally they comply. ( and if not they’re not welcome, i do not want to have a crash because of that)

    I hardly dare to ask, but have you tried diet and natural supplements? it has done me, still does me a world of good.

    Would that I could help you, lessen your hurt, lessen that debilitating feeling you have in your body

    • Anil van der Zee

      Hey Janneke, yeah the smell was the least heavy. Mostly their presence itself.

      I’m taking supplements. Sadly I can’t afford them. So that’s a bit difficult and many I don’t tolerate. The ones I do keep taking make some difference. But obviously not enough.

      Mestinon does something though. Will blog about it later.

      • Janneke

        it’s so strange how even though we’ve got the same illness, in it’s details there are always differences. I remember when I was bedbound that perfume could literally knock me out. For you the triggers are nearness, must be awful for a social guy like you. But recognize the intolerance for sups and meds. I do not try meds anymore, never had any help from them, only setbacks.

        But sups, if very carefully built up do help me. The only one I never had problems tolerating was Glycin, have you ever tried that? The effect it has on me is reducing the muscle-tenseness and in a higher dose helping getting to sleep.

        much love from here

  • ahimsa

    Thanks for sharing your story, Anil. I’m so sorry that the hassle of getting an IV cancelled out any benefits from the extra fluids.

    You
    mention that you don’t tolerate oral salt with fluids. You may have already tried all the electrolyte solutions out there but just in case I thought I’d mention one option.

    Have you tried something like
    unflavored Pedialtye? [
    https://pedialyte.com/products/classic/unflavored ] Or a generic
    equivalent?

    I actually don’t buy this product any more. I mix up my own version at home. There are several recipes online. Look for WHO oral rehydration solution. I use powdered dextrose or glucose (easier to absorb) instead of table sugar.

    Some folks leave out all the sugar but there is a reason for the sugar – sodium is absorbed more easily. (I don’t remember the complicated science behind this, sorry)

    Anyway,
    since these oral rehydration solutions are meant for people who are very sick (vomiting, diarrhea) they generally don’t cause any stomach upset. This option might not help you but it certainly shouldn’t cause any harm.

    If you’ve already tried this then I’m sorry for the repetition. But maybe it will help someone out there who’s reading this.

    Sending you some hugs ❤️

    • Anil van der Zee

      Thanks Ahimsa, Yeah I tried a few but most you describe are new to me. WHO oral rehydration solution could be interesting but they all contain sugar and I can’t handle that either. Difficult, but I will check these out a bit more for sure. Thank you very much.

      • ahimsa

        I think my last message was confusing. I don’t use any pre-mixed packets. I referenced the WHO oral rehydration recipe so that you’d have an idea of what ratios to use if you want to mix up your own batch.

        I mix up my own solution from scratch, mostly trying to match the WHO recipe, but using less glucose (dextrose). You could leave out the dextrose completely:

        2.6 grams table salt (sodium chloride)
        1.5 grams potassium chloride
        2.9 grams sodium citrate
        4-5 grams powdered dextrose
        1 liter of water

        (I hope I have all those numbers right, I’m terrible with typos)

        It’s a little bit more work to mix up my own solution but it’s much cheaper and I know exactly what is in it.

        Folks who have trouble with table sugar (sucrose) or fruit sugar (fructose) might not have any trouble with dextrose. Different types of sugar are metabolized differently by the body. But someone who understands the biology behind this would have to explain it. I’m hopeless.

        Take care.

      • @Tweetyaccount

        In summer I drink coconut water made with powdered coconut. No additions, it’s a natural rehydrator.

        • Anil van der Zee

          Sounds interesting. I should try that!!

  • z242

    I have found that the benefit of saline IVs is greatest for people with mild illness, and drops off with the severity of illness. I am fairly severe, and I recently had a saline IV that had no positive effect at all.

    • Anil van der Zee

      Sorry to hear that. I liked it. Not sure how big the impact would be on the long term. I hope I get to try it when I’m a bit better.

  • Tiny van Pouderoyen

    Speechless… Every time your updates hit me in the stomach. Hit me in the heart. Hard. How on earth do you find the energy to write, to share, to love your superheroes? Respect! Thought I’ve been on the worst end of ME, but apparently there are levels of hell below that. Wish I could help you in any way. 25 Years of ME and fibromyalgia taught me a lot, but I’m still learning to deal with it. I hate it. Still I try to enjoy all the sparkles of joy. Mesologie (6 years of treatment) and Osteopathie (12 years) took me to another level so I can go for a walk or enjoy some company. This year I started to use CBD-oil for more strength and endurance and cannabisoil to sleep at night. Just to be able to sleep is overwhelming! Still in a rollercoaster, though, for I’ve been ill for so many years (cost me my job, my marriage and a lot of ‘friends’) and now old age kicks in at 55. I’m grateful to you, for fighting so hard to make ME visible, acknowledged and treatable. I am in awe of you <3 I really really hope Mestinon will reduce your pain and health issues significantly!

    • Anil van der Zee

      Such an amazing message. Thank you!!!!!!

      I’m also sorry to hear you have been dealing with this shitty illness for so long. Let’s hope things change soon. There’s a paradigm-shift happening though. Let’s be loud!!

  • Jen

    Anil, so sorry to hear you’ve been struggling so much. I was only this ill after GET. My mum was so worried she wanted to take me to hospital, but I said they were the ones who made me so sick! I had been moderate before the GET. It’s so frustrating. The difficulty is getting that sick. I don’t think people get it that ANY kind of stimulation, sound, light, people, smells, touch are just like torture. The brain takes a lot of energy to run and I think when energy reserves are so low it is felt in this way. You describe it so well. Ahh Anil my heart goes out for you.

    I’m still mostly housebound but I’m not bedbound anymore. I can’t say there is anything I did particulalrly. It seems doing nothing is one of the few things that help, but something is needed to nourish and support the body. I really wish there was something specialist to help, but so many in the medical profession are ignorant of how severe ME is different with the energy issue and how the mitochondria are affected. I think the main focus should be on stopping patients getting so sick. That we get proper specialist intervention before it gets this bad. I often think how I may have had a chance to recover if I had got the correct advice at the beginning and if I hadn’t done GET. The ME only became worse following erroneous medical advice. It’s probably taken me 5 years to get to where I am and I’ve still not recovered to pre GET abilities, but I have improved. I hope this gives you hope too that it’s possible and you are not alone and there are people fighting for us, raising awareness and money for research.

    You and your blogs are pretty darn amazing Anil. I often don’t have the energy to read fully or write a comment, but I have to say I’m a fan and I’m rooting for your health and wellbeing with all my heart and soul and for all those missing millions who deserve more support and help. Your blogs are a part of this coming change. This illness has taken so much, but you’re still in the world through the assistance of the Internet and to hear your magnificent voice speaking about the injustice of it all. Really you are such an amazing guy and an inspiration, even though you are so severely ill at the moment, you still touch the hearts of those around you with your presence and your writing, some of them strangers like me.

    • jimells

      >>” The brain takes a lot of energy to run and I think when energy reserves are so low it is felt in this way.”

      Naviaux discusses this in some of his presentations. He says it takes a lot of energy to relax, and that restlessness and sensitivities indicate a low energy state.

      • Anil van der Zee

        I can relate to that indeed.

    • Anil van der Zee

      Thank you so much. Also for posting with your own health. I’m really touched by it. Sorry my posts are always this damn long. 🙂

  • jimells

    The first time I had IV saline was after a lumbar puncture. It worked great. It was the best I had felt in a long time, and I had no problems from the spinal tap itself.

    A few years later I went to the Emergency Room with the main symptom of weakness – I could barely stand long enough to make a coffee. I had what I now call a “hyperadrenergic POTS crash”, complete with cold clammy discolored hands and feet, feeling hot all over, cognitive difficulties, barely able to speak, elevated blood pressure, palpitations, shaking, tense all over, weakness, etc.

    After the usual lab tests showed nothing as usual, I suggested that IV saline might help, and a liter later I felt much better and they kicked me loose. This was around the time there was a lot of talk about possible adrenergic auto-antibodies, so I studied up on the adrenergic receptors.

    Increased epinephrine/norepinephrine causes vasoconstriction in the brain, kidneys, digestive system, skin, hands, and feet. Meanwhile the epinephrine/norepinephrine also causes vasodilation in blood vessels to the large muscles, so we can run away (as if).

    That explained so many bizarre symptoms, and I found I could control them reasonably well with low dose Trazodone (a alpha adrenergic receptor blocker, among many other effects) and low dose atenolol (a beta adrenergic receptor blocker).

    After surviving a few more relapse/remission cycles, it appears that for me, the source of excess norepinephrine is mast cell activation (see my response to Joanna Frost). Anti-histamines have greatly improved POTS, IBS, itching, and sleep, but have done little or nothing for my limited ability to sustain activity.

    The last two times I had IV saline they helped only a little or not at all, so I have given up on that treatment.

    • Anil van der Zee

      Interesting. I also want to try anti-histamines but not sure which one. I can’t tolerate histamine rich foods either so it would be something to explore. Thanks for pointing that out.

  • Astrid Spoor

    “Naviaux… says it takes a lot of energy to relax, and that restlessness and sensitivities indicate a low energy state”. Also my experience…..
    Helpful for me is taking (among others) the supplements: Ashwagandha root extract (Solgar) + Rhodiola root extract (Solgar). I take one capsule of each every other day (so one day one cupsule of Rhodiola and the next day one capsule of Ashwagandha and so on…). These supplements support the liver energy; Rhodiola is helpful in ‘turnning the button on’ in order to generate energy and Ashwaganda supplies energy to turn it off, because indeed it takes energy to relax!
    Beside taking these supplements it is really supportive for me to avoid eating gluten, yeast and sugar.

    • Anil van der Zee

      That sounds great. Sadly I don’t tolerate them either….

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