Project #undauerME #art2cureME #millionsmissing. A unique art project to raise awareness for Myalgic Encephalomyelitis (M.E.) through (performance) art launched in May 2017 by professional artists. It continues until it stops so more work will be added along the way.
For more information about M.E. and how you can join in and help out please check out the blog. To see the rest of the creations, please click on the Facebook link below and join this movement!!!
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When only your hands remain
Stronger than ME
God van de wind
”White, Brown & Grey”
Would you lie with me.
Karyn Benquet "Qualia"
Wubkje Kuindersma "Mångata"
Muriel Romero "Piano & dancer"
Livona Ellis "Unmoved"
Living life on low energy reserves
Wild HorsesCANNES FILM FESTIVAL & WILD HORSES Scottish student Rory Alexander Stewart’s short film Wild Horses is one of 16 films picked from 2,600 entries for Cannes film festival 2017. Wild Horses, which he wrote and directed, is about a teenage girl who has Myalgic Encephalomyelitis (ME) housebound by the condition. ----“This scene originally came after the first time our main character, Joan, left her house. Unfortunately it had to be cut due to time constraints. Although ultimately the scene is a very simple joke about Joan not knowing the difference between a depot and a station we hoped also to illustrate how overwhelming the world can be for someone with M.E. (we never got round to the sound design which would have feature heavy machinery and lots of background shouting!!)”---- I’m very excited, honoured and grateful that he was willing to dedicate a deleted scene from the movie to Project #undauerME #art2cureME to help raise more awareness for M.E. through art. Thank you Rory!!!! Trailer: https://www.youtube.com/watch?v=Z8i_BlwxTYY Article about Rory and Wild Horses in The Guardian: https://www.theguardian.com/uk-news/2017/apr/13/scottish-students-short-film-to-compete-for-cannes-festival-prize#img-1
Veronika Agranov-DafoeME Awareness by Veronika Agranov-Dafoe This is for Anil van der Zee, who is a friend of my sister-in-law's, and who is a former ballet dancer in Netherlands. Anil had to stop dancing because he became ill with ME/CFS (chronic fatigue syndrome, as it is known here in the US). He asked people to make arts tributes to make this horrible disease more visible. Here is my tribute. It is for Anil and for all the others in the world with ME.... and especially for my nephew Whitney Dafoe, who's been severely ill with ME/CFS for years, as well as for my brother- in-law who is one of the leading scientists of the ME/CFS research and Whitney's father, Ron Davis. And for my sister-in-law and Whitney's mom, Janet Dafoe. Thank you to Ashley Haugen, Whitney's sister, for being my sound and video person. This is Chopin, etude op. 25, no. 2 in F minor. #millionsmissing #undauerME #art2cureME http://anilvanderzee.com/undauerme-art2cureme-2017/ Lots of love
When only your hands remainWorld famous choreographer and friend Annabelle Lopez Ochoa is raising awareness for Myalgic Encephalomyelitis with a beautiful hand choreography. She is extremely busy so I'm very honoured she took the time to help out. Thank you very much Annabelle By Annabelle: "For my friend Anil, once a gorgeous dancer and still a dancer inside his body..."
Stronger than MERuud Adrian John Horevoorts, a steward day and night but a film composer when he's not in flight. He created this piece especially for this project. "Stronger than ME". There are images included of me. But what images do you see when you close your eyes and listen?? I hear and feel hope. Thank you Ruud.
God van de windMatthijs Janssen, former student and now professional artist. Created a very intimate solo. It's soft, quiet with that "stuck at home" feeling. Thank you very much Matthijs. ❤️❤️. Enjoy. By Matthijs Janssen: "God van de wind. Ik heb bewondering voor je hoe je vecht om ME een gezicht te geven. De beweegreden van fysieke vrijheid. hier mijn bijdrage, op betere tijden! X
linADancers from Heidelberg theatre in an amazing dance video. 3 former students Milang, Thomas, and Demi-Carlin. This video is hot!!! Ouch. All of this for #MEawarenessday & #MEawareness in general. This is stunning. Watch!! Thank you everyone involved. Milang: "ME Awareness day And I want to help. This is for the Great Magnificent Anil van der Zee❤️ . #millionsmissing #undauerME #art2cureME Caution for ME patients. There might be some difficulties viewing this video because of the fast images. Big thanks to everyone who helped making this video."
AHK StudentsMade by the students of the Amsterdam School of the arts, Tamara & Havana. Without sound for the people with hyperacusis.
OutsideA stunning solo by Nick Van de Ven outside. Outside because I and many other home /bedbound ME patients haven't been there for years. Enjoy this moment of smooth lyrical magical dancing. Thank you Nick. Nick: "I made this video for Anil van der Zee. With this video i would like to raise awareness for M.E. Anil is my ex ballet teacher, but also my real life hero. I can not imagine how it is to not come outside anymore, or almost not. Thats why i take you outside with me today Anil."
1425Worldpremière of "1425". Be sure to watch this stunning video. Especially made for #MEawarenessday and the #undauerME #art2cureME #millionsmissing Project. Thank you everybody and thank you for this great work of art. Grateful and emotional. Emma Evelein: "Today is ME awareness day. ME is a disease that effect millions adults and children worldwide, whereby you're becoming ill after exertion. Therefore most people rarely come outside, (out of bed). For some social interaction is not possible. You feel constantly physically ill and exhausted, tough it is still labeled as 'mental tiredness' in the medical world. This should get way more attention and research than it gets now. Today artists post their work to create awareness. 1425 is for these incredibly brave people, especially for my dear Anil van der Zee. Sharing is appreciated. 🙂
”White, Brown & Grey”This video was especially created for today. By former students Jori Meijer and Marnix Lenselink. Singing and tap dancing. Wow. Beautifully filmed. Go and check this one out. Thank you so very much. Jori Meijer: "PFOE! Daar is ie dan eindelijk, en ik vind dit heel spannend omdat ik er zo erg achter sta en het zo geweldig voelt om mijn kunst in te zetten voor een goed doel, voor Anil. Ik draag hierbij deze video van mijn eigen geschreven nummer ‘’White, Brown & Grey’’ op aan mijn ex-dansdocent Anil van der Zee, en aan alle anderen wiens leven in beslag wordt genomen door een ziekte, genaamd ME (Myalgische encefalomyelitis). De video vertelt het verhaal van iemand die mentaal en fysiek vastzit. Ergens is er de wil om vast te blijven zitten, te blijven hangen in wat is, dat is. Ergens is er een vlammetje in het hart dat niet wil opgeven. Met heel veel dank aan Marnix Lenselink, Tom van Wee, Cripta Scheepers en Mila Meijer ‘’With my feet in the desert brown, grey and white I tilt my head to look below with a little bit of freight I see my hands turn into teeth quite eager to bite I need to get out of this desert I hope I’ll be allright’’
Would you lie with me.Emily van Tongeren, former student, now professional model, dancer and actress created a video for #MEawarenessday. I see it as a struggle in bed?? Super sweet. Thank you so very much. "Would you lie with me. Voor Anil van der Zee " #MEAwarenessday #undauerME #art2cureME #millionsmissing #pwme #mecfs
Karyn Benquet "Qualia"Karyn Benquet, a friend and former colleague from Geneva Ballet who later went of to work in the prestigious Monaco Ballet and Netherlands Dance Theatre 1. Helps to raise awareness for Myalgic Encephalomyelitis in a dance movie together with her fellow NDT dancer colleagues. The name "Qualia" means subjectivity of perception. Fitting I would say. Karyn Benquet: Thank you, Ofer Smilansky, Kévin Quinaou and Jorge Nozal for your support. https://vimeo.com/35685989 For Anil van der Zee and the Millions Missing....get well soon! "
JessicaJessica is not a professional dancer. Yet she loves it. She is an amazing person and so is this video. Have fun watching this one. Graçias Jessica. Jessica: "A video of me dancing while cooking, things I love to do, and so many M. E. patients can't do."
IvaIva Spijkers Lesic, we know each other from the Royal Conservatory, she became a professional dancer. Now a successful teacher and now fysiotherapist. Raising awareness for Myalgic Encephalomyelitis. So amazing. Thank you. Iva: "I want you to be able to dance again, not only in your dreams. Dance with ME! #undauerME #art2cureME #millionsmissing #pwme #mecfs #VerlichtME"
Wubkje Kuindersma "Mångata"Wubkje Kuindersma, friend and now Dutch choreographer raising awareness for Myalgic Encephalomyelitis with this very beautiful Pas des Deux she created for the junior company of the Dutch National Ballet. Dancers that are the same age as when we met and both of us were still "able". Wubkje: "SHARE ART TO RAISE AWARENESS FOR M.E I met Anil van der Zee at the Dansersfonds ballet competition.. I loved his dancing and his beautiful energy. How can life turn around 180 degrees so merciless?? Please help Anil van der Zee to raise awareness for M.E. It is hard for me to think of anything appropriate to say, as without dance i would be so lost in this world... Anil van der Zee, in my memory you will always remain the most beautiful dancer... The dancers of the Junior Company have our age, when we met..that's why i share a little of Mångata here with you."
Muriel Romero "Piano & dancer"Muriel Romero, very creative friend and former colleague from Spain. Dancer with piano raising awareness for Myalgic Encephalomyelitis. Music: Pablo Palacio Choreography: Muriel Romero Light Design: Juan Carlos Gallardo Costume Design: Nicolas Maire
GeraldGérald Durand, dancer /choreographer, friend & former colleagues, creative animal. Danced in many top companies now doing his own stuff. Raising awareness for Myalgic Encephalomyelitis
VeroniqueVeronique Breen former Dutch National Ballet dancer. Diagnosed with Ehler Danlos Syndrome and ME/CFS. She improved but is still battling with symptoms. Great to see her teaching these lovely students who wanted to participate: Veronique: "For Anil van der Zee My contemporary class students wanted to share this with you... Recovering from CFS every day myself.... I don't dance anymore but I teach 😉 The video is not perfect.... a student took it. Dancers : academy of Russian Classical Ballet Musique : stole the show - parson james
UnrestErik Wagner, friend, former colleagues. Wow. Extremely fitting ❤️❤️.Like share comment and enjoy. Thank you so much. #Unrest
Livona Ellis "Unmoved""Unmoved" Choreographed and performed by Livona Ellis: "The idea for this piece was inspired by my dear friend Jasmine. She has been living with M.E./CFS and Lyme disease since 2009. She lives her life from her bed but that does not stop her from being a vital creative being in this world. We place imaginary limitations on ourselves and when you see someone surpassing real challenges, it makes you rethink the word “impossible” and your relationship to the concept. Below is the full poem written by Jasmine. "BONES" Bones on top of bones heavy cold stone bones heaped in a pile Draped in muscle limp languid motionless muscle ravenous for revival Brain engulfed in murky liquid sludge blood clogging up veins dead tissue floating marrow leaching pain Limbs dense and swollen stuffed with tar and grimy sand paralyzed with exhaustion unmoved by command Organs wheezing, gasping for air suffocating with gravity oxygen deprived system decaying rapidly Flesh sheathed in sunken skin a barren wasteland forgotten and forsaken Bones on top of bones betrayed neglected withered bones heaving in a pile."
GiuseppeFrom my friend and former colleague Giuseppe. Great stuff. Wow. ❤️❤️ go and watch it. Giuseppe BUCCI: "For my friend Anil Van der Zee, My upcoming show Opera III this thursday in Fribourg at the Nouveau Monde is dedicated to you my dear friend in order to raise awareness for Myalgic Encephalomyelitis"
KanaFrom my very sweet friend and former colleague Kana all the way from Japan. A beautiful solo. Kana Ote: "To my dear friend Anil van der zee ベルンバレエ時代からの親友、アニル。 彼と出会ったのは15年前。その時の彼は、既に経験を積んだ素敵な素敵なダンサーでした。海外生活の中で辛い事も沢山ある中、ベルン時代に出会った彼とは、家族の様に支え合い、毎日の様に一緒に時間を過ごしていました。 そんなアニルからある日、身体の調子がおかしいと連絡があったのは約10年前。始めは本人も何が体に起きているのか分からず、悩み続けてる日々が続きました。それから微熱が続き、寝たきりの状態になり、病気発症から数年後に出た検査結果が、ME(慢性疲労症候群) この病気は認知度が低いため、理解されにくく、又、慢性疲労症候群という病名から「怠け者」といった誤解を招き、沢山の患者さんが辛く、苦しい思いをしています。 日本では、24～30万人の患者がこの病気に罹患していると推定されているようです。 この病気にかかった患者さんの中には、10年、20年と寝たきりの状態が続き、後には死に至る方もらっしゃる様です。 ME(慢性疲労症候群) https://mecfsj.wordpress.com/me%E3%81…/me%E3%81%A8%E3%81%AF/ そんな中、少しでもMEの事を理解して貰いたいと思ったアニルが、自身の心を奮い立たせ、MEプロジェクトを立ち上げました。 立ち上がる事も、踊る事も困難な彼の代わりに、世界各国のアーティスト達が踊り、歌い、演奏し、MEの理解を訴え掛けます。 私もその1人として、踊りを通してMEの理解と、彼の苦しみを伝えられたらと思います。 ME(慢性疲労症候群) という病気を少しでも沢山の方々に理解して頂ける事を願うと共に、私の親友アニルと、またいつか一緒に踊れる日が来る事を、心から願っています。 是非みなさんも、このプロジェクトに参加し、ME(慢性疲労症候群)の理解を訴え掛けて下さい。 その時には、彼のメッセージを添えて… どうぞよろしくお願い致します。"
JanIntrodans pianist Jan Bijker. What can I say. What a musician. The love between a dancer and pianist never dies. They are connected forever. Plus he is just an amazing guy. Thanks you so much. What an honor. Jan Bijker: "I know Anil since he was a young boy, studying dance at the ArtEZ Vooropleiding Dans, then still in Groningen. I accompanied the balletclasses there. Everybody could see that the boy was extremely talented. Years later when we got in contact again it was a shock for me to hear that he was suffering from the terrible M.E. disease. I'm very happy to be able to contribute to raising more awareness for this debilitating( as Anil himself calls it) disease. Progress has been booked but never enough. Aymeric Aude( Introdans) was willing to co-operate and does this beautiful improvisation as I am playing the piano.Love for Anil."
Living life on low energy reservesMusic scientist and close friend Gertrude Anne Rietveld raises awareness for Myalgic Encephalomyelitis. "En daar wil ik jullie aandacht voor vragen... mijn dierbare Anil van der Zee ligt nu 2 jaar in een geluidvrijdonker ver weg van ons allemaal ziek te zijn. ME in de volksmond geheten. Anil is in hart en ziel balletdanser maar kan nu zelf zijn pink niet meer optillen en geen enkele prikkel verwerken. Heel langzaam komt er geld voor onderzoek beschikbaar maar jarenlang is de ziekte onderkend en kregen patiënten medicatie en behandelingen waar ze alleen nog maar zieker van werden. Willen jullie voor Anil en mijn verjaardag op de speciaal voor deze dag geschapen site kijken. Ook ik ben als muziekwetenschapper gevraagd een kunstwerk in te leveren. T is meer een sinterklaassurprise geworden maar ik moest zoo huilen toen ik in mijn badkamertje stond te filmen... ik mis mijn vriend! En met mij missen 100.000den anderen een vriend. Voor Anil met respect en liefs" #millionsmissing Thank you so much.
NicolasBest friend Nicolas, former dance colleague now ballet master in Ballet Dortmund raises awareness for ME. He loves singing and he's accompanied by dancer and pianist from Ballet Dortmund. Proud, honored and humbled. "Dance: Tess Voelker Piano: Jie Xu Voice: Nicolas Robillard"
Mendy"For Anil, friend, former classmate and dancepartner. I feel vulnerable posting this video because I'm not a performing artist anymore. Almost 10 years ago I ended my career as a professional but in my heart I will always be a dancer. I don't call myself a choreographer but as a teacher I create in order to share my love and passion for dance.Inspiration for this video was the thought: What would I miss about my live if I was very sick, isolated and alone.The people I love, places I go to, music and dance.Some parts I dance without music to emphasise the loneliness in silence."
SelfieProject #undauerME #art2cureME #millionsmissing!!! From the 1st of May professional dancers, choreographers, singers, photographers, musicians etc. will be sharing their work on social media to raise awareness for Myalgic Encephalomyelitis. Be sure to read the blog, check out the Facebook page to see some of their work. Share the videos. And please join us.
PHOTOGRAPHY & DRAWINGS
Decription below the images
“What about M.E.”
by Bram van der Enden