Saltar al contenido

Anil van der Zee Entradas

Mike Harley is running for our lives in Amsterdam.

Mike Harley is running for our lives in Amsterdam.

Publicada el October 3, 2017

You quite often hear about people doing amazing things for good causes. Yet Myalgic Encephalomyelitis is not a disease that has had the privilege of attracting that kind of attention. So it’s been quite something to get to know Mike Harley from Bristol. He’s running a marathon in every country in the EU, raising awareness and funds for Invest in ME, a UK charity promoting education and research for ME. What an amazing effort. Here’s my interview with someone I consider to be a true hero.

Seguir leyendoMike Harley is running for our lives in Amsterdam.
1 comentario
For patients with CFS, going to the bathroom is similar to running a marathon.

For patients with CFS, going to the bathroom is similar to running a marathon.

Publicada el October 3, 2017

Patient and doctor Mark Vink about Chronic Fatigue Syndrome.

Having so little energy that you can only leave your bed twice a day: that’s what CFS can be like. Researchers suggest it’s a mental disease. Nonsense, says doctor and CFS-patient Mark Vink.

Written by: Ellen de Visser, September 30 2017

Seguir leyendoFor patients with CFS, going to the bathroom is similar to running a marathon.
7 comentarios
Praised from the dark.

Praised from the dark.

Publicada el August 23, 2017

Being alone on stage, you really don’t see audience. The first 2 rows might be visible, however the rest is as obscured as the dark night.
Possibly some sounds reach your ears on stage, but for sure, they are felt. Their presence from that dark void, their spirits merging collectively with yours, what an amazing feeling, a high relatable to no other. It would fill me with energy for days. Do I now experience a similar feel??

Seguir leyendoPraised from the dark.
4 comentarios
Neuro(logist)-M.E. Militant

Neuro(logist)-M.E. Militant

Publicada el July 21, 2017

The Dutch neurologist Emile Keuter, a “prominent” figure in the Medically Unexplained Physical Symptoms (MUPS) world referred to the ME community as the “militant CFS/ME community”. He ends his blog by claiming that CBT seems to be reasonably effective against physical fatigue but not with ME patients and makes the suggestive remark by saying “You may guess why”. I had to respond!!!

Seguir leyendoNeuro(logist)-M.E. Militant
14 comentarios
#undauerME #art2cureME #millionsmissing (ENG)

#undauerME #art2cureME #millionsmissing (ENG)

Publicada el March 17, 2017

I’m raising awareness for Myalgic Encephalomyelitis (M.E.) better known as Chronic Fatigue Syndrome (CFS) through (performance) art. M.E. is a debilitating neuroimmune disease affecting 17 million children & adults worldwide. The name CFS wrongly suggests that this illness is all about chronic fatigue or rather chronic exhaustion. I asked some my fantastic friends, who are (former) professional dancers and fellow artists to help me explain.

Seguir leyendo#undauerME #art2cureME #millionsmissing (ENG)
35 comentarios