The Dutch neurologist Emile Keuter, a “prominent” figure in the Medically Unexplained Physical Symptoms (MUPS) world referred to the ME community as the “militant CFS/ME community”. He ends his blog by claiming that CBT seems to be reasonably effective against physical fatigue but not with ME patients and makes the suggestive remark by saying “You may guess why”. I had to respond!!!
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2016 turned out to be one of the most challenging years I have ever had to deal with. My housing situation was impossible in combination with my disease. I reached a real breaking point and became in need of urgent help. What did the Dutch health care system have to offer me? Did I get any help??
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As a dancer I have been surprised by the treatments I’ve received for my disease Myalgic Encephalomyelitis. I want to share my opinion from a dancer’s perspective. What do other professional ballet dancers think about the treatments and the current care that’s being offered to ME patients??
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I’m raising awareness for Myalgic Encephalomyelitis (M.E.) better known as Chronic Fatigue Syndrome (CFS) through (performance) art. M.E. is a debilitating neuroimmune disease affecting 17 million children & adults worldwide. The name CFS wrongly suggests that this illness is all about chronic fatigue or rather chronic exhaustion. I asked some my fantastic friends, who are (former) professional dancers and fellow artists to help me explain.
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